Her face looked like that of an old woman. She was only 15 years old. Now Adalia Rose Williams is dead, and Texans have suffered from progeria. This means something like “premature aging”.
Williams rose to fame through her videos on the web. She had about three million subscribers on YouTube and twelve on Facebook. Plus many on Tiktok and Instagram. The teenager was a star, openly fighting the disease. Now I lost the fight.
Williams passed away on Wednesday. “On January 12, 2022 at 7 p.m., Adalia Rose Williams is released from this world,” her Facebook profile reads. “She influenced millions of people and made the greatest impression on everyone who knew her.”
family mourns
The girl is no longer in pain and is now dancing to all the music she loves, the post continues on Facebook. “We want to thank everyone who loved and supported her,” the family writes. He goes on to say, “Thank you to all of your doctors and nurses who worked for years to keep you healthy.” The family now wants to mourn the loss in secret.
By Saturday afternoon, the post had been liked more than 900,000 times. Nearly 180,000 comments have been left on this.
Adalia Rose was 3 months old when she was diagnosed
Progeria is an extremely rare disease. Williams was one of the very few. There are only about 200 known cases worldwide, according to the European Organization for Rare Diseases. The full name of the age-related disease is Hutchinson-Gilford Progeria Syndrome. Adalia Rose was diagnosed when she was three months old, NBC News reports.
The portal “Medline Plus” explains that affected children will not show any visual abnormalities at birth and in early childhood. But growth and weight gain will gradually slow down. And: “They acquire a distinctive appearance of the face with prominent eyes, a thin nose with a beak, thin lips, a small chin and prominent ears.”
According to the Observer, some children with Hutchinson-Gilford progeria syndrome may reach adulthood. However, the average life expectancy is only 13 years. (nl)
“Professional music expert. Creator. Student. Twitter aficionado. Unapologetic coffee trailblazer.”
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